Lupus Underground - A Patients Case for a Long-Ignored Drug-Free Non-Patentable Counter-Intuitive Therapy That Actually Works

ISBN 0-9763428-0-4 

Perfect Bound Acid-Free 6" x 9" Paperback 
117 Pages
5 Illustrations, b&w

Lupus Underground Includes:
A Reference for Lupus 
UVA1 Phototherapy Research 
1987-2003

$23.95 USA
$29.00 Canada
£13.00 UK

Published by
Hyde Park Media
 

 FROM LUPUS UNDERGROUND

Hugh McGrath, Jr., MD:

“Although joint pain, photosensitivity, skin rashes, mouth ulcers, headache, depression and insomnia respond to UVA1 therapy, the most gratifying response for the patient has been the loss of fatigue. This observation has heightened our own awareness of fatigue as a major source of disability in lupus."

Lynn, 
a UVA1 patient for 13 years: 

“My energy was non-existent. My kids would wake me up, I’d make them breakfast and go back to bed. They’d wake me up for lunch, make that, and go back to bed. I couldn’t even empty my dishwasher all at one time...At first, the treatments were five days in a row for three weeks. After the second week, I was a new person. It was incredible." 

Fredrick Urbach, MD:

“The trouble with UV is that most people don’t know what they’re talking about.”

 LUPUS/UVA1
Studies/Papers
UPDATES

January 21, 2008
New York Times Health Guide
Systemic Lupus Erythematosus:
Investigational Treatments
"UVA-1 Phototherapy: 
A promising treatment uses ultraviolet A-1 (UVA-1) radiation, long UVA wave lengths that do not promote sunburn and may actually block inflammatory immune factors..."

February 14, 2008
U.S. News & World Report
Overabundance of Immune Cells Might Trigger Lupus - Study spots overactivity of genes that prevent cell death in those 
with autoimmune disease
"Researchers from Saint Louis 
University report that a pile-up of superfluous immune cells might contribute to lupus, a finding which could point to new therapies for the autoimmune disease."

June 5, 2006
Musculoskeletal Report
 New Treatment for Lupus Brought to (UVA-1) Light
"UVA-1 phototherapy can be an effective and safe adjuvant therapy to the traditional pharmacological therapies in SLE patients."

March 7, 2006
Rheumatology 2006;45(6):653-655
Editorial - Light therapy (with UVA-1) for SLE patients: Is it a good or bad idea?

2006
Lupus, Vol. 14, No. 10, 859-861 (2005)
Elimination of anticardiolipin antibodies and cessation of cognitive decline in a UV-A1-irradiated systemic lupus erythematosus patient

April 12, 2005
Rheumatology 2005 44(7):925-931
Ultraviolet-A1 phototherapy modulates Th1/Th2 and Tc1/Tc2 balance in 
patients with systemic lupus erythematosus
 "On the basis of our study, UVA1 phototherapy does seem to be an effective adjuvant in the treatment of SLE patients."

November 11, 2004
Rheumatology. 2004;43:1402-1404
UVA1 Light Useful as Adjuvant Therapy for Systemic Lupus Erythematosus 
"A new study by Dutch researchers has found that UVA1 light therapy significantly decreases validated disease activity indices in patients with moderately active systemic lupus erythematosus (SLE) without causing significant adverse effects." 

LUPUS UNDERGROUND

A Chicago reporter stricken with lupus gives himself the assignment of finding a way back on his feet. After spending nearly 2 1/2 years researching and exactly $4,934.48 on tanning equipment (that’s right, sun tanning equipment), he files this report on a long-ignored, drug-free, non-patentable, counter-intuitive therapy that actually worked -- UVA1 Phototherapy. 


FROM THE INTRODUCTION

If the demonstrated potential of UVA1 light to improve the lives of lupus sufferers were more publicly known, if research concerning both benefits and risks were accurately presented, if critics were fair, if our pharmaceutical industry didn’t hold excessive power over medical research and practice...Lupus Underground would not have needed to be written. If UVA1 light didn’t alleviate fatigue, it wouldn’t have been.

DOWNLOAD complete Introduction and 
Contents page as a PDF.
 May require download of free Adobe Acrobat Reader


ABOUT THE AUTHOR

Anthony DeBartolo is a Chicago-based journalist who has frequently contributed to the Chicago Tribune. His feature work has also appeared in daily newspapers across the U.S. and in Canada, including the Baltimore Sun, Chicago Sun-Times, Orlando Sun-Sentinel, Sacramento Bee, St. Louis Post-Dispatch and Toronto Star


BOOK REVIEW
from the American Autoimmune Related Diseases Association's newsletter, InFocus, March 2005:

"Lupus Underground, by Anthony DeBartolo, is billed as 'a patient’s case for a long-ignored drug-free non-patentable counter-intuitive therapy that actually works.' Readers of the September 2003 issue of InFocus learned of research being carried out at Louisiana State University by Hugh McGrath, M.D., in which ultraviolet A-1 light therapy was being used to treat lupus patients. DeBartolo, lupus patient and newspaper reporter, goes looking to Dr. McGrath and others for the facts behind this therapy and, in the process, finds help for his own problems. Sometimes easy to read, sometimes very technical, but largely encouraging, this is, as the author states, 'a reference for lupus UVA1 phototherapy research.' It is well referenced – and not your usual lupus book."


POST-KATRINA 
BOOK UPDATE
Along with many others, 
Dr. McGrath's life & work in New Orleans were severely disrupted by Hurricane Katrina. As a result, his Louisiana State University Medical School contact information published in Chapter 5, Page 53 is no longer valid.

We are, however, very pleased to inform you Dr. McGrath is back at work at a new medical school. 

While patients with questions regarding Dr. McGrath's work are encouraged to read this book, physicians can contact him directly at this address:
Hugh McGrath Jr., MD 
Rheumatology, Department of  Medicine
Tulane University Medical School
SL-57
1430 Tulane Avenue
New Orleans, LA 70112


HOW TO ORDER LUPUS UNDERGROUND

Via Amazon ( US, UK, Canada, France, Germany and Japan ) as well as Powell's, and more than a dozen other international retailers including Barnes & Noble, Blackwell's, AbeBooks and Alibris

You can also order 
ISBN 0-9763428-0-4 
at your local book store.


Lupus Underground: A Patient's Case for a Long-Ignored, Drug-Free, Non-Patentable, Counter-Intuitive Therapy that Actually Works
Includes A Reference for Lupus UVA1 Phototherapy

©2004 Hyde Park Media. All Rights Reserved.